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SCI
Research
SPINAL CORD INJURY RESEARCH
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Understanding The Health Care Needs of Publicly Insured Recipients With
Tetraplegia: A Family Perspective
Investigator: Colette H.
Duggan, BSN, MSN, Ph.D.
Using a family-centered perspective,
experienced researchers at the Rehabilitation Institute of Michigan (RIM)
propose a pilot study of the health care needs of Medicaid/Medicare recipients
with tetraplegia. This two-year study is being funded by a $112, 500 grant from
the Blue Cross Blue Shield of Michigan Foundation (Grant 105.II).The long-term
goals of the study are to better understand the complexities and policy
implications of providing health care to publicly-insured persons with
tetraplegia and to provide pilot data for a larger, more comprehensive study of
their needs.
The
objectives of this investigation are (a) to provide an in-depth description
of the health care experiences of Medicaid/Medicare recipients with
tetraplegia—especially as these bear on health care access and consumer
satisfaction, (b) to ascertain how access to goods and services (or it’s lack
thereof) impacts on the health, functioning, and well-being of SCI participants
and their family caregivers, and (c) to determine the nature and scope of unmet
needs of SCI participants and their families. The study employs a mixed-method
(qualitative/quantitative) to collect and analyze data.
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Work Environment and
Quality of Life Outcomes: A Comparison of the Experiences of Formal and Informal
Caregivers of Persons with Spinal Cord Injuries
Investigator:
Colette H. Duggan, BSN, MSN, Ph.D.
The objective of the study is to document from a
contextual life perspective, the linkages between the specific demands of
caregiving and its health consequences. The study targets three groups of SCI
caregivers: (a) unpaid (family) caregivers; paid caregivers hired directly by
the consumer, and (c) paid employees of home health care agencies
The specific aims of the
study are to: (a) conduct a comparative study of these three caregiver groups;
(b) analyze this information with specific attention to the connections between
aspects of the work environment, stress, physical health and psychosocial
well-being, and (c) disseminate this information to SCI consumers and their
families, rehabilitation researchers and clinicians, and to agencies charged
with the responsibility of establishing health care policies.
The study employs a mixed
(qualitative/quantitative) methodology and is guided by a set of exploratory
hypotheses that incorporate concepts about the disablement process, the
stress-coping process, the stress-health/illness relationship, and the dynamics
of quality of life assessments. Criterion-based purposive sampling will be used
to recruit and interview 84 caregivers of community-dwelling persons with
SCI.
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A
Constellation of Outcome Measures Assessing the Effectiveness of an Innovative
Intervention Program for Persons with Spinal Cord Injury
Investigators: Cathy A. Larson PT, Ph.D.; Steve Hinderer MD, PT;
Bill Thornton PT; Paula Denison PT
Purposes: The primary
purpose of this study is to assess the comprehensiveness,
sensitivity/responsiveness, practicality, and patient acceptance of a
constellation of selected outcome measures to document change in persons with
SCI who are participating in the innovative, intensive intervention program
utilized by the RIM CSCIR. The second purpose of this study will be to examine
the effectiveness of the CSCIR intervention program in promoting recovery of
function below the level of the SCI specifically comparing the outcomes for
clients have undergone versus not undergone one of the new surgical
interventions aimed at spinal cord recovery.
The study is funded by the
Del Harder Research Fund/ United Way of Southeastern Michigan in the amount of
$54,602 for two years (2006-2007) and is currently active.
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